“How puzzling all these changes are! I’m never sure what I’m going to be, from one minute to another.”

There is a time between being awake and sleeping that is supposed to be reflective and relaxing. Your mind slips out from under the leash that restrains all the madness during the day and it frollicks with the self that doesn’t care, that’s connected to the universe intimately and unafraid. No one is immune to experiencing all that [...]

Heather Niles

Heather Niles

This is Heather Niles, my sister. She passed away one week ago; it still feels like only moments ago. I don’t know how I feel about her death, expected though it was. I loved her and hated her as only a sister could. I pay tribute to her tonight: the moments we had and the [...]

Sisters Even in Death

Some of you may or may not know much about my big sister, Heather. She has a rare genetic disease called FOP or Fibrodysplasia Ossificans Progressiva. This is where muscles and ligaments turn to bone. It only affects a person’s mobility. There isn’t any intelligence deficient or changes to her being a big obnoxious sister. I [...]