Heather Niles

Heather Niles

This is Heather Niles, my sister. She passed away one week ago; it still feels like only moments ago. I don’t know how I feel about her death, expected though it was. I loved her and hated her as only a sister could. I pay tribute to her tonight: the moments we had and the [...]

Sisters Even in Death

Some of you may or may not know much about my big sister, Heather. She has a rare genetic disease called FOP or Fibrodysplasia Ossificans Progressiva. This is where muscles and ligaments turn to bone. It only affects a person’s mobility. There isn’t any intelligence deficient or changes to her being a big obnoxious sister. I [...]